Thursday, March 27, 2008

ONLY SIX MORE TREATMENTS!!!

Talked to Dr. Mundy today, and he told us there were only six more treatments instead of the 11 we thought.

HAPPYNEKKIDALMOSTDONEDANCE!!!!

Having said that, it looks like I've lost only about 12 pounds since the treatments began. That's really quite good. I'd "budgeted" 20-25, and I know I'll continue to drop some after the treatments stop because I'll still be dealing with the side effects, but 12 is really good.

Pretty much everything is as it was. The mouth sores come and go, but the rinse Dr. Lehr gave me does a good job on them, so when I start feeling soreness, I rinse two or three times a day for a couple of days and they subside.

The throat is still really, really painful. I'm still having the awful allergies that wake me up coughing, so until whatever is in the air leaves, I'm going to be making my throat worse. Still, I can deal with it.

Anyway, that's my update for the week. Randall and I are REALLY looking forward to the end of the radiation treatments. It's wearing both of us to a nub.

Everyone have a great weekend!

Tuesday, March 25, 2008

Just an aside...

It'd be a hell of a note to make it through radiation treatment and cancer surgery only to die of some cholesterol related problem.....

**says she who is blowing through a dozen eggs a week, lots of shredded cheese and full fat cream cheese**

Sunday, March 23, 2008

Eating

Food has gotten to be a real issue around here.

Since the radiation treatment began four weeks ago, I've lost 10 pounds. Most of that is due to a) the raw sore throat/mouth sores and b) some things just taste nasty.

And also, there's a definite boredom link. I do believe when this is all over, I will never eat macaroni and cheese again. Granted, I've been eating the microwave single serve Easy Macs, but I am so sick of them I think it will probably spill over to better recipes. This is sad because one of my go to comfort foods has always been mac n' cheese.

I keep hoping my sore throat will recover somewhat since what is going on this weekend is a direct result of spending a whole lot of Friday night coughing my head off. We've apparently got a new pollen in the air that is giving me fits. I was up every three hours to pop a new benadryl. Needless to say, it turned my throat into a raw, red hunk of pain. Today is better than yesterday, but not by a lot.

So mainly this is a whining post. I've probably not had more than 1500 calories over the last two days, and that's not going to be nearly enough. If my throat will get a bit better, I'm pretty sure I can increase what I eat by quite a bit. If not, well, there's the feeding tube. :(

Friday, March 21, 2008

Week Four - Done

And oh am I glad to see the weekend. We were told that would happen, and yep, it did. :)

Not really anything to report. I did see Dr. Mundy and he's asked me to stop using the rose hips oil/cream. He thinks it's contributing to the redness of my face. I disagree, but hey, I can use something else. As soon as I stopped using it the other day, my face started peeling. When I mentioned that to him, he suggested I use aloe or vitamin E.

We swung by Drug Emporium on the way home, and I'm now the proud owner of a jar of aloe cream. And I've used it. And I'll use it more tonight and over the weekend. Honestly I don't think the rose hips is the cause, but I'd waste my breath arguing it, so here we are. I'll go back to the rose hips when the treatment is done. It's really wonderful stuff (thanks, Eadie!), so I'm looking forward to using it again.

Main thing to report is a really sore/dry throat. I picked up some "throat tea", too, as well as some sore throat lozenges. They may give me just a bit of relief and, if so, I'll be grateful.

And bless Randall's heart, he's run up to the store to see if there are any food options for me. Real food options as opposed to shakes and puddings. Maybe some yogurt or cottage cheese. Maybe even some cream-based frozen dinners. I'd like anything that's not liquid. Like me, he's looking forward to the weekend and hopefully staying home for two days.

So here we are. Week four is done. I've had 4,000 of the 6,000 RADS that I'll have by the time the treatment is done. And may I say I'm heartily sick of the whole process. I know it's for the good, but still. It is SO boring. LOL

Everyone take care and have a terrific weekend. I'll see you good folks next week!

Wednesday, March 19, 2008

Halfway through and an ENT update

Today marks the official half-way point in my radiation therapy. And OH am I happy. Course, the worst is probably in front of me, but now I can at least say I'm on the downhill side of this treatment.

The girls at the clinic are still concerned about my red face. I kept telling them not to, but they've asked that I stop using the rose hip oil on the treatment field for a few days to see if that makes a difference. I told them sure, but that I was just about 100% certain that they were seeing what happens to a fair complected green-eyed blonde who never gets out in the sun when she meets a radiation beam on a regular basis. Since it still doesn't hurt, even if it looks like hell, I'll humor them through the weekend and we'll revisit this on Monday.

Once we finished up at Fentress, we had to run over to see Dr. Lehr at Providence hospital (rather than at Hillcrest hospital that is just one parking lot over) for my monthly follow-up.

Dr. Lehr poked around in my mouth and sympathized greatly with the sore mouth/throat. He also prescribed his version of the magic mouthwash that my radiation oncologist has prescribed. This one has nystatin and lidocaine like the other, but also includes liquid tetracycline and prednisone. Randall will pick it up tomorrow, and I'm really hoping for some help because my throat and tongue (I've got a couple of sores on there) have kept me from eating much in the last two or three days. I've lost about 5 pounds since last Thursday, and that's a concern.

I also asked Dr. Lehr about chemotherapy, and he pretty well stopped that idea in its tracks. He said nothing is indicating a need for chemo, so Randall and I have decided to drop the chemo route...at least for now. I know there will be another CT scan done at the end of my radiation treatment, and if things don't look the way they should, we can come back to it then. Dr. Lehr said it would just make what I'm going through now worse and there wasn't a need for it.

Tomorrow I may see Dr. Mundy and, if so, I'll pop in for a quick update. If not, you all have a great weekend and I'll touch base next week.

Friday, March 14, 2008

Week Three is Done

And man is my ass dragging. My cheerful disposition is dragging, too. :)

15 days of radiation and I can tell you that sleeping around the clock has real serious appeal. Of all my current side effects, the tiredness is the one that gets me the most. I'm literally up for an hour and ready to go back to bed for two hours. Right now, I'm spending most of my afternoons/evenings in my nightshirt. I try to have normal clothes on from fairly soon after I wake up until we come back from the treatment. After that, though, it's nightshirt city.

Talked to Dr. Mundy yesterday and gave him an update on how I'm doing physically. Mouth sores - check. Very sore throat - check. Fatigue - check. Very red skin around jawline - check.

The mouth sores and sore throat are causing eating problems. Not unexpected, but if they keep me from eating, I'll end up with a feeding tube. There's really no other way. I'll see how things progress this weekend and early next week and let him know how it's going. I'm expecting to lose weight, but it won't be because I'm on a low cal/low fat diet plan.

Randall got a humidifier for my room yesterday and that seemed to help a bit. He's also wanting me to get down three fortified ice cream milkshakes a day. Fingers crossed there. It certainly won't be for lack of hunger.

The redness on my face is to be expected, too. However, it doesn't hurt, so I told the techs and the RN today that I'd keep an eye on it and if that changed, they'd be the first to know. I figure if it doesn't hurt, I'll just keeping putting creams on it three times a day. If it starts hurting, then we'll have to address that somehow.

Pain really isn't too bad yet except for my throat. And this would be good because Dr. Mundy doesn't prescribe Tramadol. Fortunately, I've got a whole lot here (enough to carry me through the radiation provided I don't have to take it by the handful), so that may not be an issue. I get the distinct impression that pain management isn't something he's particularly concerned about. Of course, I'm so weird with pain meds that I can sort of understand him not really believing me when I say nothing works unless it's in an IV. Sadly this is one of those things a doctor has to experience with me before he believes it. So for now, I'm going with 3 pain killers a day plus my regular dosage of ibuprofen that I take for other stuff. Right now, that works.

I did talk him into prescribing me some straight Lidocaine...something he hates to do, but I was just about insistent on it because the other stuff he's given me (a "magic mouthwash" concoction) doesn't really work well. I know Lidocaine has a whole bunch of nasty side effects dealing with the heart, but right now, the amount I need is fairly small (maybe 1 1/2 teaspoons a day). I told him I'd monitor my usage over the weekend and let the RN know how much I was taking. I also told him if the amount increased I'd tell him.

On the chemo front, we're where we were. Dr. Mundy talked to the clinic and they've thrown the ball back in our court. It all comes down to money, of course, but it may be possible we can work out something for an initial consult/blood work and see if chemo is even needed. To be honest, there is no way I could do both it and radiation at the same time. I'd be dead. So Randall will check in with the clinic in person after April 1 now that he knows who to talk to and we'll dance that dance then. Whatever gets done, though, will have to wait until my radiation is finished and that's not until April 18.

So that's my update for week three. I hit the halfway point of my treatment mid-week next week. I will be so glad when this is over.

Tuesday, March 11, 2008

No update today

I didn't get to see Dr. Mundy today, so there's no update there.

I can say that the mouth sores and sore throat are really, really here. To the point that tomorrow I'm going to have to talk him into finding me another option than the Magic Mouthwash stuff that doesn't really do a thing for the pain.

Sunday, March 9, 2008

SSSSOOOOOOOOOO tired.....

Yep. The side effects of the radiation are definitely coming home to roost.

I am absolutely drop dead exhausted. And that's after sleeping until 11:30 (or is it 10:30?) this morning, and also having a two hour lay down this afternoon. My legs feel like they're going to buckle. Taking a shower tonight is going to be loads of fun.

From the looks of things, I'm good for about 30 minutes before I'm so exhausted I have to sit or lay down. I can only imagine how much fun I'll be having in two or three weeks.

And the mouth sores are really here. Tomorrow I'm going to switch to all liquid/soft foods. Right now I can still manage thing like baked potatoes and shaped pasta, so I'm not totally without some options. But soups are starting tomorrow. Thank goodness I have a freezer stocked with them. I'm pretty sure I'll have to make more before this all ends, but I've got enough for at least three weeks. Not sure how I'll manage to get soups made up if I'm only good for a half hour, but I'll figure it out.

I figure now is the time I start losing weight. :)

Friday, March 7, 2008

Discovery...

Amazingly, things that you know are supposed to taste like shit are things you have absolutely no problem at all tasting (f/ex my "magic mouthwash" that has lidocaine, nystatin and cherry-flavored liquid benadryl in it) . Things that are supposed to taste good, you can't taste at all (chocolate ice cream with hot fudge sauce).

Truly sucks.

Week Two - Friday Update

If anyone sees my tastebuds, be sure to wave as they go by.

Yeah. Sadly the tastebuds went AWOL yesterday. By last night, it was really obvious when I dipped my chicken strip into some BBQ sauce I'd made last year and frozen and it had no taste. Ditto the honey-mustard sauce. Then my after-dinner chocolate ice cream tasted odd.

In theory, food will have little/no taste for several months. Food might even taste totally crappy, which won't help me want to eat for the nutritional values. Whether or not I'll get all my taste back is up in the air. And let me tell you, as someone who lives to cook, that's some really bad news. Pisses me off, but what can you do? I have read a cancer diary from someone who began taking zinc tablets after her radiation ended, and I'm going to try that. Apparently it accelerated the return of her tastebuds, so I'm open for that. Can't do it while the treatment is going on, but when it stops? Oh yeah.

Also, the mouth sores have started showing up. They're not horrendous, but Randall has run a script for some Magic Mouthwash up to the Drug Emporium pharmacy. Hopefully that will stave off the worst of the pain. Straight lidocaine works and that's one of the ingredients. So tonight I should have that here to add to my routine. And I have lots and lots of trammadol here. I take one at night before bed because I figure it's pretty important that I sleep through the night and by then, the mouth sores are really making the presence felt. And since I was able to stay off that medicine for a month or so, it seems to be working just fine again.

The fatigue and dry mouth are also here. I've blocked out 3:30-5:30 to lay down and rest (read: nap) and I'm not up until 9:30 each morning. We'll adjust those times if we have to, but so far they seem to be keeping the worst of the fatigue at bay. And, well, drinking lots of water, but that's pretty standard for me anyway, so it's really not news.

I know I sound like a walking, whining side effect, but there's no real other way. LOL These are all things we knew would show up and the effects would be cumulative, so I'm sure in a couple of weeks I'll look back nostalgically on all of this.

Anywho, everyone have a good weekend, and unless something weird happens, I'll probably blog again on Tuesday.

Tuesday, March 4, 2008

Radiation - Week Two - First Update

I think I'm going to move my regular updates to Tuesday because it looks like that's when I get to see Dr. Mundy and talk to the radiation group's RN. I'll post a quickie note on Friday if I need to, but most of the meat should be on my Tuesday updates.

Things are trucking right along. My weight is being maintained which is something the clinic is happy to see. Everyone knows it's going to start dropping off when the side effects kick in, but just how much is anyone's guess. For now, I'm eating everything in sight and like I told Corrie, the RN, I'm probably one step away from a heart attack because the only way I'm maintaining my weight is by eating full fat foods (cream cheese, ice cream, eggs, regular cheese, etc.). So I've definitely got the weight to drop, but the way it's going to come off is going to be a whole lot less than idea. Nothing for it, though.

No particular side effects yet. I am noticing some tenderness in my mouth and that could be a precursor to the mouth sores that come with radiation where it's being sent. I don't know for sure that that's what it is, but I've brewed up my strong chamomile tea rinse and that's going to now be a regular part of my day. No sore throat yet. No major skin problems, either. I'm slathering on two or three different creams three times a day (during the week and twice a day on Saturday and Sunday). So far so good.

I think I did sort of freak Corrie out today because my questions were all morbid. LOL Apparently I go in stages on that and today was my day for asking the stuff that depresses the hell out of you. No worries, though, they were just questions. Nothing substantial and no depressing answers, so that's that. One thing we did find out is they are going to give me the absolute maximum of radiation for the location. That's good news since I really only want to dance this dance one time.

Dr. Mundy touched base today and asked if it just didn't work out with the chemo doctor. I told him we'd never heard a word from that clinic so we had no idea whether it was or wasn't working. He said he'd call them again. So we're still about where we were a couple of weeks ago on this. I'll be honest, my concerns about that clinic have to do with the way it's run. I've not got a comfort level there, but maybe that will change if we ever get in to see the chemo oncologist.

So all in all, things are going well. No real side effects. I'm maintaining my disgustingly sunny disposition (*grin*) and we'll just keep plugging away at this.